Privacy policy (simplified version)

Kailo is a research project led by University College London (UCL) and other partners. We work with young people, families, schools and professionals to learn how to improve young people’s mental health and wellbeing.

What information do we collect?

We may collect information such as:

• Your name and contact details.
• Your age or date of birth.
• Your views, ideas and experiences.
• Information about your background, such as ethnicity or whether you have a disability.
• Information about your physical or mental health if it is relevant to the research.

We only collect the information we need.

Why do we collect your information?

We use your information to:

• Understand what helps young people’s mental health.
• Improve services and support for children and young people.
• Make sure lots of different voices and experiences are included in our research.

How do we collect your information?

We may collect information when you take part in:

• Interviews.
• Focus groups.
• Workshops.
• School activities.
• Surveys or questionnaires.

We will explain what information we are collecting and why before you take part.

Do you have to take part?

For most activities with young people, we will ask for your agreement (consent) before you take part whenever possible. We will also give you information about the project so you know what to expect.

Who can see your information?

Your information is stored securely and only shared with trusted research partners when needed. We never sell your personal information.

Whenever possible, we remove your name and other details so no one can identify you in reports or research findings.

How long do we keep your information?

We usually keep personal information only for as long as we need it. In many cases, this is up to five years after it is no longer needed, unless the law says we must keep it for longer.

Your rights

You have the right to:

• Know what information we have about you.
• Ask to see your information.
• Ask us to correct information that is wrong.
• Ask us to delete your information where the law allows.
• Ask questions about how your information is used.
• Make a complaint if you are unhappy with how your information has been handled.

How do we keep your information safe?

We use secure systems and trained staff to protect your information. If there is ever a data breach, we will investigate it and take action to protect people’s information.

Questions?

If you have any questions about your information or how it is used, you can contact the Kailo study team.

If you have any concerns about your personal data that we hold, please contact our Data Protection Officer at data-protection@ucl.ac.uk and they will investigate the matter. You can find out more about how we use your information at https://www.ucl.ac.uk/legal-services/data-protection-overview. Information Commissioner’s Office: https://ico.org.uk/for-organisations/guide-to-data-protection/guide-to-the-general-dataprotection- regulation-gdpr/individual-rights/